News & commentary on disability issues
The Los Angeles Times reports on three nonprofit websites that offer web pages to families with chronic illness, allowing them an easy and effective way to communicate with family and friends. Leading sites are Caringbridge.org, CarePages.com and theStatus.com. Families praise them for helping to promote a community of care around their loved ones.
Posted by
Pat
at
7/23/2007 04:46:00 PM
Labels:
families,
health care,
medicine
Bauer is a former member of an Institutional Review Board (IRB) at UCLA, where she participated in the ethical review of federally funded medical research on human subjects, and has addressed national and regional conferences on the rights of patients and people with disabilities. During the Carter years, she worked in the White House press office as editor of the White House News Summary.
She is a member of the President’s Leadership Council at Dartmouth College, the Pacific Council on International Policy, and the board of trustees of the Riverview School in East Sandwich, Massachusetts.
Bauer and her husband are among the founders of the Pathway Program at UCLA, a post-secondary program for young adults with intellectual disabilities. They are the parents of two young adults, one of whom has Down syndrome and is a survivor of leukemia.
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