When the National Down Syndrome Congress meets in Kansas City this weekend for its annual confab, I'll be there. Look for me on Sunday, when I'll be giving a keynote address and a workshop on disability coverage in the media.
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News & commentary on disability issues
Photo by
Corinne Adams
About me:
Patricia E. Bauer is a journalist who has served as senior editor of the Los Angeles Times Sunday Magazine; special assistant to the publisher of the Washington Post; reporter and bureau chief at the Washington Post, and pundit on public affairs television in Los Angeles. Her articles have appeared in the Washington Post, the New York Times and many other publications.
Bauer is a former member of an Institutional Review Board (IRB) at UCLA, where she participated in the ethical review of federally funded medical research on human subjects, and has addressed national and regional conferences on the rights of patients and people with disabilities. During the Carter years, she worked in the White House press office as editor of the White House News Summary.
She is a member of the President’s Leadership Council at Dartmouth College, the Pacific Council on International Policy, and the board of trustees of the Riverview School in East Sandwich, Massachusetts.
Bauer and her husband are among the founders of the Pathway Program at UCLA, a post-secondary program for young adults with intellectual disabilities. They are the parents of two young adults, one of whom has Down syndrome and is a survivor of leukemia.
Recent Posts
- I've moved
- Stand tall
- Life is far from ordinary for these kids
- Some parents say special ed is too easy on students
- Not all my sons
- A prenatal screening story with a difference
- Law day in disability world
- Tories seek to end inclusion of students with disabilities
- Epilepsy zeitgeist
- Special education's hager steps down
- From the in-box
- MS discovery leads to treatment hopes
- Autism: Random? Or mom?
- Vouchers for kids with disabilities? Proceed with caution
- A little housekeeping
- My lovely son, the Hollywood star
- Is the workplace discriminating against parents?
- More Sunday stories
- NPR: Acting normal in a world that thinks you're not
- Law grants new rights to European travelers with disabilities
- ADA anniversary, continued
- Diabetic and determined
- Special education = costly education
- Public buys harmful epilepsy myths
- On the 17th anniversary of the ADA ...
- Disability = Taboo
- Democrats shift policy on abortion
- Millions for "wrongful birth"
- Planned Kevorkian speech draws protests
- No genetic privacy? No problem.
- The next generation of bionic people
- Schools beat back demands for special ed services
- In China, disabled children are sold into slavery
- A helping hand for families living with chronic illness
- Alzheimer's treatment seen
- To headline writers: Two thumbs down
- Braille literacy drop called civil rights issue
- The zeitgeist: reporting on the r-word
- Amnio report sparks disability debate
- UCLA offers college experience to students with intellectual disabilities
- Fetal medicine expert tells all
- Kuwaitis reported biased against Down syndrome
- Locked out: Doctors won't see Medicaid patients
- Sex selection redux
- Parallels between sex selective abortions and selective terminations
- Who is helped and who is harmed by using donor eggs?
- Early screening cuts births of children with Down syndrome by 50 percent in Denmark
- Unkind words wound people with disabilities and their caregivers
- Prenatal screening tied to MD concerns over lawsuits: Economist
- A tale of two Daniels
- A calm, rational discussion of special education ...
- Prenatal screening = panic
- Race, genetics and what else? Prenatal diagnosis
- States get dismal report cards on special ed
- Clinic allowed to screen embryos for squint
- Woman with DS killed in apparent murder-suicide
- Note to the media: We can do better
- Guaranteed to give you a headache
- Real jobs for real people, take 2
- Secret pacts a problem for special ed
- Still more on the "pillow angel" saga
- More unintended consequences of prenatal diagnosis
- Prenatal diagnosis, mothers' perception of bias
- Language matters
- Public man, private father
- Real people, working
- PWD* reacts to prenatal screening
- College honors
- The paradox of normal
- Reporting on disability with nuance
Columns and articles
Links
- AAIDD (American Association on Intellectual and Developmental Disabilities)
- Access Ability (blog)
- American Association of People with Disabilities
- American College of Obstetricians and Gynecologists
- American Federation of Teachers
- Autism Speaks
- Beach Center on Disability (University of Kansas)
- Bioethics Forum (The Hastings Center)
- Canadian Down Syndrome Society
- Center for Genetics and Society
- Disability law blog
- Disability Rights Education and Defense Fund
- Down Syndrome Research & Treatment Foundation
- Genetics and Public Policy Center
- Education Week
- The IRB Forum
- Isn't She Talking Yet? Blog by India Knight
- National Association of Special Education Teachers
- National Center for Learning Disabilities
- National Council on Disability
- National Down Syndrome Congress
- National Down Syndrome Society
- National Education Association
- National Human Genome Research Institute (NIH)
- National Office of Public Health Genomics (CDC)
- National Organization on Disability
- National Organization for Rare Disorders
- Office for Human Research Protections (OHRP) (HHS)
- Ouch! BBC Disability Magazine
- Romenesko -- Poynter Institute
- Thinkcollege.net
- Wrightslaw
Frequently asked questions
Labels
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- commentary (21)
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- diabetes (1)
- disabilities (21)
- discrimination (8)
- Down syndrome (23)
- education (7)
- employment (2)
- entertainment (3)
- epilepsy (3)
- ethics (14)
- eugenics (2)
- euthanasia (1)
- families (5)
- first-person (2)
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- health care (2)
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- humor (3)
- in the media (17)
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- prenatal diagnosis (18)
- privacy (1)
- public attitudes (23)
- public policy (4)
- PWDs (3)
- research (5)
- sex selection (2)
- special education (5)
- stigma (3)
- travel (2)
Contact me:
patriciaebauer@gmail.com
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